Having the idea for this post, I googled, tic toc or
tick tock? Turns out, it can be tic toc, tictoc, tick tock or tick-tock.
I'm going to go with the latter because the AP-stylist in me likes hyphens. The
spelling became less important when I read the definition anyway.
tick-tock
noun
A clock; also, by extension, the human heart: wind the
tick-tock/ tick-tock is going strong at 70
The Dictionary of American Slang, Fourth Edition by Barbara
Ann Kipfer, PhD. and Robert L. Chapman, Ph.D.
Copyright (C) 2007 by HarperCollins Publishers.
Wow. My reference, you see, was to describe the sound of a
clock: tick-tock, tick-tock. But maybe it is, in fact, the sound of the human
heart that's inspired this post. Yes, I think so. Tick-tock, tick-tock. The
sound of my son's beating heart.
Tick-tock. It's mid April and I'm lying awake in
bed again. I'm facing Augie's travel crib, staring hopefully at his pulse
oximeter machine, watching the waves and numbers fluctuate. 76, 75, 73,
72. . .back up to 75. C'mon, go to high 70's, I think to myself. 75. . .76! OK,
now I'll close my eyes and try not to worry. After all, the thing alarms if he
goes below 70.
I spent many nights gambling with the pulse oximeter,
watching his oxygen saturations creep lower and lower over time. We knew this
would happen yet it's frightening, especially after seeing the story of a
fellow CHD mom posing with her baby in the mirror. From what I remember, she
was taking a selfie with her baby at the three-month milestone. But then at
four months, she posed alone, sobbing, holding her baby's onesie and four-month
sticker. This mom was in a similar situation. At home with her baby, awaiting
another stage of surgery. I feared, my gosh, Augie is about to be
four-months-old. Could this be me?
Tick-tock. It's June 7th and I wait and wait...and
wait. My baby was taken back for surgery at 7:30 a.m. and I get my first update
at 9:00. It goes something like this, "Augie is sedated, and all
lines needed for the surgery are in place. He's comfortable and all is going
well. They should be starting to work through the skin and then enter the breast-bone. This will be the
longest portion of the surgery. The surgeon will be extra careful due to the
scar tissue from his previous surgeries."
An hour and-a-half later, I get another update. Still working
on the incision. The day goes on, update after update. Until finally, the
surgeon himself delivers the last update and I can breathe a sign of relief. My
son has survived his third open-chest surgery. For the third time, his teenie
body was opened up. His heart was connected to a bypass machine. He received
donor blood. His vessels were severed and reconstructed to give his abnormal
arrangement a more efficient function. He was taken off the bypass machine and
his heart worked on its own once again. He was sewn shut. Drains let out
residual blood and fluid. A ventilator kept him breathing until he came
to.
It's all so intense. Yet this last time, it felt so normal.
It's a part of Augie's life in order for him to have a life. Our thoughts are, wow,
at least they didn't have to 'turn him cold' to perform the surgery like last
time.
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Finally getting to snuggle a just-extubated Augie two days after his Glenn surgery |
Tick-tock. It's July 9th and I wait and wait...and
wait. Wednesday can't come quick enough. On Wednesday, we plan to pack up our
SUV with a little U-Haul attached and finally see Houston in our rearview
mirror. Guys. It's been almost eight months since I've left the Houston metro. Eight...that includes Thanksgiving, Christmas, New Years, Valentine's, Easter, Mother's & Father's Day AND the 4th of July! And I can count the times I've gone outside of Loop 610 on one hand. To
be clear, this is more of an expression of disbelief than a complaint. I will
stay in Houston as long as I need to to ensure my baby is healthy enough to go.
But now, apparently it's time. Augie's cardiologist even looked at me and
said, you need to go home now.
It's time to show our son where he really comes from. It's time to let his daddy finally get back to work in person! It's
time for him to see God's country made up of endless miles of fields and the
most beautiful sunsets in the world. It's time for him to meet his
dog! Getting home won't happen overnight. We must make pitstops in Dallas
and Lubbock for a wedding and a doctor's appointment. But if there's one thing
I've learned in all of this, it's patience! Of course, we are nowhere done with
Houston. We'll be back for check-ups and
consults. And yes, more surgery down the road.
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Choosing not to live life in a complete bubble at the Astros vs. Yankees! |
So now is the time I ask you for help. Please pray for our
safety and Augie's wellbeing during our trek across Texas! Also - if any
of you feel inclined to do something in his honor, donating blood is a
great gesture! If you are a donor already, we thank you too!
Tick-tock, tick-tock. The sweet sound I hear when I put my ear to Augie's
warrior scar. It makes these months spent watching the clock so worth the
while! Thank the Lord and thank you everyone for your prayer and support!
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